cleft palate repair date!

• 04-30-2008 7:32 PM

  Alsion1818357 Joined on 11-11-2006 Ontario Posts 503	cleft palate repair date! Reply Contact Avery is doing well and cleft repair is set for June 10th..I can not belive what a crazy busy emotional year it has been with her...what a super sweet baby she is though..happy girl!

• 05-14-2008 7:05 PM

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  Petrona Joined on 05-15-2008 Chase born March 9th, 2007 Posts 124	Re: cleft palate repair date! Reply Contact My daughter had hers repaired at 1 year old and her recovery was quick, fairly painless and she never need the speech therapy they told us she might. Good luck to your little one.

• 05-15-2008 10:42 AM

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  ArmyMom Joined on 07-01-2006 TX Posts 19,553

  Re: cleft palate repair date! Reply Contact That's awesome Alison!!!!!   Definitely keep your speech therapy appointments, if she isn't doing them yet, start them up as soon as you can. PRS babies need that extra little help! Since she is so young,  she will pick things up fast. They will be able to show you different things to do at home that is supposed to help stimulate the jaw growth and work with her on that as well. Keep us updated!!!!!

• 05-19-2008 8:11 PM

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  Alsion1818357 Joined on 11-11-2006 Ontario Posts 503	Re: cleft palate repair date! Reply Contact thanks! Avery has a good team behind her..we see Physio,occupational and feeding&speech theripist regularaly! we have her pre op next week and genetics testing the begining of June!

• 05-22-2008 7:36 AM

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  ArmyMom Joined on 07-01-2006 TX Posts 19,553

  Re: cleft palate repair date! Reply Contact Alsion1818357: thanks! Avery has a good team behind her..we see Physio,occupational and feeding&speech theripist regularaly! we have her pre op next week and genetics testing the begining of June! That's awesome!! We have a new team now. I am not sure how I feel about them. The new ENT is awesome though!!! I'm excited for you! Let us know how the surgery goes, I'll be thinking of her!

• 05-25-2008 8:24 PM

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  Alsion1818357 Joined on 11-11-2006 Ontario Posts 503	Re: cleft palate repair date! Reply Contact does she have prs as well? she looks very cute in the profile pic! gow old is she now??

• 06-11-2008 9:55 AM

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  ChristieBFAP Joined on 02-09-2004 www.SweetPeaRingSlings.com Posts 7,148	Re: cleft palate repair date! Reply Contact How did it go???

• 06-16-2008 6:56 AM

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  AlisonS Joined on 06-13-2008 Posts 154

  Re: cleft palate repair date! Reply Contact well we are all done with it! the surgery it self went well...Avery did have some big problems when they extabated though with her breathing.alot of strider and they almosy reintabated...thanks goodness she pulled through this,they placed her in a oxy hood and sent her to the pccu for the day/night. The next day was better but om my was she swollen and MAD!! she is a big time thumb sucker so that pissed her off she could not get to her thumb. She is having a bit of oral aversion but we have the g tube to fall back on so it is ok for now...she is feeling much better today...thanks for all the prayers and well wishes!! oh yes after our gentetics apointment we have some answers as to why Avery has the problems she does...myself,my oldest son HAyden.my youngest son Cooper and Avery have sticklers syndrome.

• 06-16-2008 8:50 AM

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  ChristieBFAP Joined on 02-09-2004 www.SweetPeaRingSlings.com Posts 7,148	Re: cleft palate repair date! Reply Contact  She is sooo cute!!!  Congrats on having the repair over and done with.  Mine was a thumb sucker too and was very mad about the restraints!

• 07-10-2008 2:52 PM

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  ArmyMom Joined on 07-01-2006 TX Posts 19,553	Re: cleft palate repair date! Reply Contact Oh Alison!!!!! Avery has gotten so big since the first pictures you showed me! She is beautiful!!! I'm glad she pulled though alright. Did she restart sucking her thumb? Emma used to suck her middle fingers. Ever since her cleft repair, she has sucked on her blankie instead.

• 07-22-2008 8:00 PM

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  AlisonS Joined on 06-13-2008 Posts 154

  Re: cleft palate repair date! Reply Contact ArmyMom: Oh Alison!!!!! Avery has gotten so big since the first pictures you showed me! She is beautiful!!! I'm glad she pulled though alright. Did she restart sucking her thumb? Emma used to suck her middle fingers. Ever since her cleft repair, she has sucked on her blankie instead. yep..she went right back at it as soon as she could!! how is Emma doing?anything new with her?/

• 07-23-2008 8:40 AM

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  ArmyMom Joined on 07-01-2006 TX Posts 19,553	Re: cleft palate repair date! Reply Contact Emma is doing well. She had one of her tubes replaced (the right ear) back in June. Her speech has really picked up since then! It's amazing, that even with one working tube that it would have that much of an affect!

• 07-27-2008 10:56 AM

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  AlisonS Joined on 06-13-2008 Posts 154	Re: cleft palate repair date! Reply Contact How is Emma's jaw looking? Avery;s plastic surgeon is till saying Avery's is on the very small side and may need the jaw distraction..not for a while though...what have you heard about this?

• 08-21-2008 4:49 AM

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  iman2895763 Joined on 06-08-2008 Posts 1	Re: cleft palate repair date! Reply Contact she is so sweet n cute baby congrats she is fyn now....May God bless her

• 11-14-2008 12:10 PM

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  ArmyMom Joined on 07-01-2006 TX Posts 19,553

  Re: cleft palate repair date! Reply Contact AlisonS: How is Emma's jaw looking? Avery;s plastic surgeon is till saying Avery's is on the very small side and may need the jaw distraction..not for a while though...what have you heard about this? Sorry it's taken me a while to respond. Emma will have to have the extraction also. They won't do it until she is at least 18. They want her to be fully grown so that they know exactly how much her jaw will ned to come out. Other wise it will just keep growing and a whole new set of issues will arise!